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Help and advice needed re travelling abroad with Humira Options
Veronica-C
#1 Posted : Wednesday, April 06, 2011 3:45:15 PM Quote
Rank: Newbie

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Joined: 10/21/2010
Posts: 1
Hello - please can someone give me some advice about travelling abroad with Humira? I am holidaying twice this year - once to Canada for a couple of weeks and again in September to Greece for a month. The pharmacist at Healthcare at Home has told me I will have to purchase a "coolchain?" bag for £25, which is too large to go into a suitcase and has to be put in the hold, incurring extra charges for additional luggage. As both holidays will include changes of location I'm very concerned at the level of inconvenience this will cause, not least because of having three pieces of luggage when I try to board a long-distance bus in Greece! They may well refuse to let me travel.
I have only been on Humira for six weeks, but have so far seen little or no improvement. I am seriously thinking of coming off it.
Any info gratefully received!
Veronica
suzanne_p
#2 Posted : Wednesday, April 06, 2011 3:58:12 PM Quote
Rank: Advanced Member


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Joined: 8/25/2010
Posts: 1,289
Location: Buckinghamshire
hi Veronica,

there is a topic under the Drug Section headed :

Coolbox for travelling with Humira, currently on the second page.

hope this helps you.

sorry to hear you feel the Humira isn't working for you ... i am currently waiting to go on it, having failed on Methotrexate and Hydroxy. sort of pinning my hopes on this one.

don't come off it until you speak to your Rheumy Nurse or Consultant though as it might be doing more than you think.

take care,

Suzanne x
Anne-P
#3 Posted : Wednesday, April 06, 2011 6:14:57 PM Quote
Rank: Advanced Member


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Joined: 2/14/2011
Posts: 301
Location: South Hampshire
Hi Veronica

I'm on Humira and was told that it mustn't go in the hold on the plane as it gets to cold for it, as it must be kept between 2 and 8 c.

I was told to take it in hand luggage. Put it in a small cool bag with iceblocks (small ones). You have to be careful of the 100ml liquid limit in the ice blocks. Take the letter with you and make sure it doesn't go through the x-ray machine, which my letter says on it. Apparently it can be warmed up for 24 hours maximum, when travelling, but then you must get it cooled down asap. It can't be warmed up twice.

Depending on how long you are away, you could take one dose just before you go; even if it is a few days early. Then take one or two with you. On a flight to greece the iceblocks should keep it within the required temperature. When you arrive buy some really cold drinks at the airport (or water ice lolly - but put them in sealed plastic bag for when the defrost) - and put them in the icebag to replace the ice blocks.

There is another link on here that might give some extra info.

Hope that helps.

Anne
LynW
#4 Posted : Thursday, April 07, 2011 9:02:51 AM Quote
Rank: Advanced Member

Groups: Registered

Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
Hi Veronica

I have travelled Europe with Enbrel but never really been well enough (or perhaps that should read confident enough!) to go further!

Always worth doing a test run before you go to ensure your cool packs keep the injections at the right temperature. I'm not sure about the warming up process? I was told that once Enbrel is out of its 'chill factor' it must be used within a few hours and not re-chilled as will affect the efficacy. You would need to check this. I use a small collapsible lunch bag (the kind you get for school lunches) and two ice packs. The info given by Healthcare at Home (who I have found to be brilliant incidentally) is actually incorrect!

Injections MUST be carried in hand luggage (too cold in the hold!) and you must check with the airline that it is permissible for them to be carried before you travel. I was not allowed to take my injections on board a Jet2 flight and had to leave them at the airport!
You will also be obligated to ensure the safe disposal of used needles at your destination.

I think perhaps in view of your travel proposals it might be worth speaking to rheumatology for their advice. The meds you are on, due presumably to your moderate to severe disease status, and the plans you have don't quite seem to go hand in hand!

As regards to Humira, please don't give up yet it is still very early days! It can take a minimum of three months to fully load the system before you will see a noticeable difference ( although sometimes sooner!). You should, of course, only come off the medication with the agreement of your consultant as a suitable alternative would need to be put in place.

I know this doesn't sound optimistic for your plans but better to proceed with some caution whilst plans can still be adapted! Good luck

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

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